What Tools Can I Use to Take an Active Role in My Well-Being?
When you have a chronic condition like polycythemia vera (PV), it is vital to play an active role in your care. Your Healthcare Professional will monitor your condition and how it affects you and can also help you cope with stress and challenges that may arise.
To make the most of your time with the Healthcare Professional, write down your questions ahead of time and bring them with you. The list below will help you get started.
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- What are the goals for my PV?
- What are my target blood counts and what are my actual blood counts?
- Hematocrit (red blood cell volume)
- White blood cell count
- Platelet count
- Other
- What is my plan to keep my condition under control?
You may also want to ask these additional questions:
- How often do you want to see me?
- How often will I need to be monitored?
- What types of tests or procedures will I need to have?
- What do you feel is the best course of action for me?
- What information do you want me to keep track of?
- What symptoms or problems do you want to know about right away?
- What are potential complications of my condition?
- What should I do if I start feeling overwhelmed by my PV?
Be sure to work with your Healthcare Professional to set up a wellness plan that is right for you.
Explore more commonly asked questions about PV.
Where Can I Find Support and Resources for Living With PV?
The following is a list of helpful educational resources that you can use to learn more about living with PV.
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How Can I Connect With the PV Community?
For people living with PV, it’s important to know that you're not alone—and that there is a community of support within your reach. Connecting with other people who have been through similar experiences and managed similar challenges can make a meaningful difference on your journey with PV.
Through a variety of programs and resources, the Voices of MPN website links people with PV to disease information, educational programs, and community activities while inviting people to share their stories and spread disease awareness.
Find Out What's Happening in the MPN Community
Explore the MPN Calendar of Events
Receive Updates on Polycythemia Vera
Get a PV awareness bracelet and educational resources when you register
Track Your MPN Symptoms 
