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Join the MPN Community and Track Your Symptoms

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Author: Voices of MPN

Myeloproliferative neoplasms (MPNs) are a group of rare blood cancers that include polycythemia vera (PV), essential thrombocythemia (ET), and myelofibrosis (MF). MPNs affect the levels of blood cells in an uncontrolled way. These diseases are known as progressive, meaning that they can grow and change as you do.

MPNs can greatly affect your quality of life, so it’s important to work closely with your Healthcare Professionals in order to manage your symptoms. For many people living with rare diseases, it can be easy to feel overwhelmed and to mistake symptoms of their disease with other factors, such as getting older. That’s why it’s a good idea to ask a caregiver or loved one, if you can, to help you keep an eye out for new or worsening symptoms.

At Voices of MPN, we encourage you to track any and all potential symptoms of your condition. Keeping track of new or current symptoms over time will help you communicate to your Healthcare Professional what you need. When they know how you’re feeling and what you’re experiencing, your Healthcare Professional will be able to create a treatment plan that works for you. You can use the tools below that we have created to help you track and communicate your symptoms.

If you’ve been diagnosed with an MPN, know you’re not alone. Connecting with other people who are living with an MPN can help you find support on your treatment journey. Share your experience and find support within the MPN community by getting involved in some of the events and programs listed below.

START TRACKING YOUR SYMPTOMS TODAY

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PV Symptom Assessment Form

Watch as a leading MPN expert walks you through how to use the PV Symptom Assessment Form to help you keep track of your PV symptoms, their severity, and their impact on your quality of life.

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MF Symptom Assessment Form

Join an MPN expert as she reviews how the MF Symptom Assessment Form can help you identify and track your MF symptoms, their severity, and their impact on your quality of life.

GET INVOLVED IN THE MPN COMMUNITY

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Attend a Free Patient Meeting

Connect with MPN experts in real time at our free live webinars. Learn how to actively manage your condition and get the support you need.

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Join Upcoming Voices of MPN Facebook Live Events

Hear directly from MPN experts during Facebook Live events throughout the year. Don’t miss the opportunity to hear about topics related to MPNs, get your questions answered live, and build connections with others living with an MPN.

Visit the Voices of MPN Facebook event page for more information.

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